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Gwenfar's Garden and other musings

Notes on growing ornamentals and edibles, and musings on other matters that interest me.

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#MyalgicE

Update 2: Using a heart rate monitor to better manage MECFS (finding my baseline, halting decline)

1 February 2023

Um, it’s taken me a bit a time to get around to writing a follow up post to that written in August 2021. Somehow life, moving from South Yorkshire to South Wales, and more life, well, it got in the …

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Categories #MyalgicE, #pwME, Heart Rate Monitor, HRM, HRV, MECFS
A section of the back garden. There is decking with lots of potted plants on it, then the grass area and some more plants in pots. The sun is shining across the plants on the decking area.

Growing through phases (phase 1)

23 January 202323 January 2023

The last few months I’ve been thinking a lot about how to design my new back garden. With the past couple of gardens, I confess, my plans were based on hope. I mean, all garden plans are, but mine were …

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Categories #MyalgicE, Accessibility, Gardening with ME, MECFS, Uncategorized

Including disabled people in politics

18 February 20227 February 2022

Updated 18th February 2022 Disabled people are often told we are needed in politics and should be more active, but the people saying this never consider what kind of accommodations might be needed to make it possible for us to …

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Categories #MyalgicE, #pwME, Abelism, Accessibility, Chronic illness, Disability, MECFS

Update 1: Using a heart rate monitor to better manage MECFS (including HRV)

1 February 20231 August 2021

In mid June, I talked about using a heart rate monitor to better manage MECFS. I thought it might be useful to post an update and let you know how it’s going. And I’m adding information about another useful measurement, …

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Categories #MyalgicE, #pwME, Accessibility, Chronic illness, Disability, Gardening with ME, Heart Rate Monitor, MECFS, Uncategorized

Using a heart rate monitor to better manage MECFS

1 August 202115 June 2021

A couple of months ago I was asking questions on Mastodon and Twitter for help with finding a heart rate monitor to help me better manage pacing and my MECFS symptoms. The reason for this was that I’d read a …

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Categories #MyalgicE, #pwME, Accessibility, Disability, Gardening with ME, Heart Rate Monitor, MECFS
A white blonde woman standing in the community garden, wearing gardening gloves and holding a small pot with a young plant in it. She is looking to the right, and is talking about potting on or planting out young plants.

Slow-onset ME

2 June 202112 March 2021

This article was first published in the ME Association’s ME Essential magazine, Spring 2021, pages 32-33. Slow onset ME. You’ve probably never heard of it. It’s mentioned here and there, and on the ME Association website, but there are no …

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Categories #MyalgicE, #pwME, MECFS, Other Musings, Uncategorized Tags Chronic Illness, Disability, MECFS, MyalgicE, Slow-onset ME

An interim design for the new back garden

14 May 202121 June 2018

Work has completed on the back garden and I thought I should introduce the design and how it all looks now. The design for the back garden is not yet fully formed, but like with the front garden, I’d really like …

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Categories #MyalgicE, back garden, Gardening with ME

New design for the front garden

14 May 202110 June 2018

I’m in a bit of a bind. I want to follow permaculture principals and take time before making major decisions about my new garden. But I am also in an odd situation where I have exactly the same layout of …

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Categories #MyalgicE, front garden, Gardening with ME, Hardy Perennial

Gardening with ME: what’s flowering in the garden in June

14 May 202122 June 2016

I’ve not been up to blogging or gardening recently. The ME has been bad and I’ve needed to rest. I was able to get out into the garden and take some photos on the weekend, so I thought I’d just …

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Categories #MyalgicE, Gardening with ME, Kitchen garden, Shady Border

Spoonie Veg: Sorrel

26 March 202323 May 2016

Updated 26th March 2023 Spoonie Veg rating: 1 Ok, my hands are up, I admit this isn’t the most obvious first choice for an individual Spoonie Veg blogpost. Bear with me, and see if I cannot convince you that Sorrel …

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Categories #MyalgicE, Gardening with ME, Perennial Vegetables, Sorrel, Spoonie Veg
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