Growing through phases (phase 1)
The last few months I’ve been thinking a lot about how to design my new back garden. With the past couple of gardens, I confess, my plans were based on hope. I mean, all garden plans are, but mine were …
MECFS
Including disabled people in politics
Updated 18th February 2022 Disabled people are often told we are needed in politics and should be more active, but the people saying this never consider what kind of accommodations might be needed to make it possible for us to …
Update 1: Using a heart rate monitor to better manage MECFS (including HRV)
In mid June, I talked about using a heart rate monitor to better manage MECFS. I thought it might be useful to post an update and let you know how it’s going. And I’m adding information about another useful measurement, …
Using a heart rate monitor to better manage MECFS
A couple of months ago I was asking questions on Mastodon and Twitter for help with finding a heart rate monitor to help me better manage pacing and my MECFS symptoms. The reason for this was that I’d read a …
Stroll/roll: along Lightwood (Sheffield)
Stroll/roll: my partner strolls, I roll, on my mobility scooter The lovely summer weather, combined with a little bit of energy, led to us deciding to take a fairly local stroll/roll today. We ventured over to Lightwood, which is about …
Slow-onset ME
This article was first published in the ME Association’s ME Essential magazine, Spring 2021, pages 32-33. Slow onset ME. You’ve probably never heard of it. It’s mentioned here and there, and on the ME Association website, but there are no …
Mobile Sheffield
Sheffield city centre is a decent sized city. From the Castlegate area down to the Moor Market, it’s about 2 miles. There used to be a city circle bus route that you could hop on and off to get to …
ME Awareness Day 2017, and my gardening clogs
12th May marks ME Awareness Day. In particularly, the #MillionsMissing movement aims to raise awareness for M.E., an underfunded and ignored disease. Today we ask for increased government funding for research, clinical trials, medical education and public awareness. It’s timely …
Waiting with ME
We have all been there. We’ve booked in a tradesperson to come around and fix something in our home (whether rented or owned). You plan for it, often taking a day off work. They don’t turn up at the agreed …
Garden visiting with ME
An ME Awareness Week blogpost As this is primarily a gardening blog, I wanted to contribute a post to ME Awareness Week within this context. After some recent experiences visiting some large gardens in Scotland, I wanted to write about …