Tramping about: accessing nature
I had plans. I had so many plans. I wanted to visit the gardens of Iran. Soak up the history and culture of Morocco. Travel to the Caucasus on an alpine plant holiday of discovery. I wanted to finally be …
MECFS
Beach scenes: Barry Island and the beach wheelchair
I don’t recall the last time I walked on a beach. It’s been years, then some more years still. To be fair, we either lived in Oxfordshire or South Yorkshire, which are no where near the beach. But mainly it …
Growing through phases: phase 1 complete
The first phase of the landscaping was finished last week! It looks bare now, but it is ready for planting. To remind you what it looked like previously: And now: The empty paved area will be for the chairs, table …
Update 2: Using a heart rate monitor to better manage MECFS (finding my baseline, halting decline)
Um, it’s taken me a bit a time to get around to writing a follow up post to that written in August 2021. Somehow life, moving from South Yorkshire to South Wales, and more life, well, it got in the …
Growing through phases (phase 1)
The last few months I’ve been thinking a lot about how to design my new back garden. With the past couple of gardens, I confess, my plans were based on hope. I mean, all garden plans are, but mine were …
Including disabled people in politics
Updated 18th February 2022 Disabled people are often told we are needed in politics and should be more active, but the people saying this never consider what kind of accommodations might be needed to make it possible for us to …
Update 1: Using a heart rate monitor to better manage MECFS (including HRV)
In mid June, I talked about using a heart rate monitor to better manage MECFS. I thought it might be useful to post an update and let you know how it’s going. And I’m adding information about another useful measurement, …
Using a heart rate monitor to better manage MECFS
A couple of months ago I was asking questions on Mastodon and Twitter for help with finding a heart rate monitor to help me better manage pacing and my MECFS symptoms. The reason for this was that I’d read a …
Stroll/roll: along Lightwood (Sheffield)
Stroll/roll: my partner strolls, I roll, on my mobility scooter The lovely summer weather, combined with a little bit of energy, led to us deciding to take a fairly local stroll/roll today. We ventured over to Lightwood, which is about …
Slow-onset ME
This article was first published in the ME Association’s ME Essential magazine, Spring 2021, pages 32-33. Slow onset ME. You’ve probably never heard of it. It’s mentioned here and there, and on the ME Association website, but there are no …