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Gwenfar's Garden and other musings

Notes on growing ornamentals and edibles, and musings on other matters that interest me.

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MECFS

A photo of a border which has lots of hot pink flowers of Silene coronaria, mixed in amongst other plants and a rusted steel obelisk.

Gardening with ME: upon reflection

4 April 2025

There is some gardening with ME that you can do in bed. I’m not joking. I do my best thinking about the garden whilst resting in bed. Over winter, I spent time reflecting on the past year, thinking about what …

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Categories #MyalgicE, #pwME, ME Association, ME Essential, MECFS, Uncategorized Tags Chronic Illness, Disability, Gardening with ME, ME Association, ME Essential, MECFS
A photo of a two page article, introducing the reader to Gardening with ME. It includes a few photos, which will be shown in the blogpost with alt text.

Gardening with ME: an introduction

5 November 20243 October 2024

Long-standing readers might wonder at the title of this post. Before you say, hey, Gwenfar has been talking about Gardening with ME for ages, here’s why this I’ve titled this ‘an introduction’. I am now writing a quarterly Gardening with …

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Categories Gardening with ME, ME Association, ME Essential, MECFS, Uncategorized Tags Chronic Illness, Gardening, Gardening with ME, ME Association, ME Essential, MECFS
A smiling white person on a tramper mobility scooter, along a stony path, surrounded by lots of fresh green spring growth of ferns and young tree leaves. There is a fast moving stream with trees along it's shore, to the left.

Tramping about: accessing nature

14 May 202413 May 2024

I had plans. I had so many plans. I wanted to visit the gardens of Iran. Soak up the history and culture of Morocco. Travel to the Caucasus on an alpine plant holiday of discovery. I wanted to finally be …

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Categories #MyalgicE, #pwME, Accessibility, Chronic illness, MECFS, Travel, Uncategorized
Three people, two white, one a person of colour. One white person sitting in a beach wheelchair, the other two people above and behind. Everyone is smiling and happy. To the left you can see the sandy beach and the edge of the water.

Beach scenes: Barry Island and the beach wheelchair

14 May 202424 June 2023

I don’t recall the last time I walked on a beach. It’s been years, then some more years still. To be fair, we either lived in Oxfordshire or South Yorkshire, which are no where near the beach. But mainly it …

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Categories #MyalgicE, #pwME, Accessibility, Disability, MECFS, Penarth, Wales
A section of the back garden that has been completed by the landscapers. You can see the layout with two raised beds and one lower ornamental bed, paving, and rusted steel arch. This backs on to the back of the house.

Growing through phases: phase 1 complete

5 March 202310 February 2023

The first phase of the landscaping was finished last week! It looks bare now, but it is ready for planting. To remind you what it looked like previously: And now: The empty paved area will be for the chairs, table …

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Categories Accessibility, Back garden Penarth, Gardening with ME, MECFS, Uncategorized

Update 2: Using a heart rate monitor to better manage MECFS (finding my baseline, halting decline)

1 February 2023

Um, it’s taken me a bit a time to get around to writing a follow up post to that written in August 2021. Somehow life, moving from South Yorkshire to South Wales, and more life, well, it got in the …

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Categories #MyalgicE, #pwME, Heart Rate Monitor, HRM, HRV, MECFS
A section of the back garden. There is decking with lots of potted plants on it, then the grass area and some more plants in pots. The sun is shining across the plants on the decking area.

Growing through phases (phase 1)

23 January 202323 January 2023

The last few months I’ve been thinking a lot about how to design my new back garden. With the past couple of gardens, I confess, my plans were based on hope. I mean, all garden plans are, but mine were …

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Categories #MyalgicE, Accessibility, Gardening with ME, MECFS, Uncategorized

Including disabled people in politics

18 February 20227 February 2022

Updated 18th February 2022 Disabled people are often told we are needed in politics and should be more active, but the people saying this never consider what kind of accommodations might be needed to make it possible for us to …

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Categories #MyalgicE, #pwME, Abelism, Accessibility, Chronic illness, Disability, MECFS

Update 1: Using a heart rate monitor to better manage MECFS (including HRV)

1 February 20231 August 2021

In mid June, I talked about using a heart rate monitor to better manage MECFS. I thought it might be useful to post an update and let you know how it’s going. And I’m adding information about another useful measurement, …

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Categories #MyalgicE, #pwME, Accessibility, Chronic illness, Disability, Gardening with ME, Heart Rate Monitor, MECFS, Uncategorized

Using a heart rate monitor to better manage MECFS

1 June 202315 June 2021

A couple of months ago I was asking questions on Mastodon and Twitter for help with finding a heart rate monitor to help me better manage pacing and my MECFS symptoms. The reason for this was that I’d read a …

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Categories #MyalgicE, #pwME, Accessibility, Disability, Gardening with ME, Heart Rate Monitor, MECFS
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